pWdumaNjA-6CEEBhRoD5euxNETs When All This Actual Life Played Out: Her horizon

22 June 2017

Her horizon

Near Badwater Basin
Death Valley National Park, California
24 November 2015

When I get out of bed, I lurch to one side. Which I expect because it's become more frequent. But as I catch myself, I lurch the other way and then back again. Stop, right the ship, move forward.

If you'd pay more attention... I tell myself. Though I know it probably makes no difference. Sometimes, if I concentrate very hard on taking steps, my feet don't drop and drag along the pavement. Sometimes it makes no difference. Like the small misstep that landed me back at a food-free diet.* If only I'd paid more attention.


Yesterday, stuck in traffic, wrists resting on the steering wheel so I wouldn't clench it with my hands, I realized that here I am. There is management but no cure. I want to argue, as my doctors have done with me so many times, that I am too young for this. I stare hard at the license plate on the SUV in front of me without seeing it. Death lies somewhere up there, and I test that theory. I mean I've always known that, it's just that I felt I had some control in the process.

I probably don't. And it suddenly feels more real.

Then in the afternoon I find the story of Kam Redlawsk, an artist with a rare genetic condition which will ultimately completely paralyze her. My soul aches for her. My story is different, but I know the anger and pain of each progressive loss. I also know that in comparison, I am lucky.

And then the daughter tells me of the announcement that one of her college classmates has died. The young woman withdrew from school a few months ago because of illness.

I am lucky in more ways than one.


I know that I promised happier words. It's a process. I am not particularly sad or depressed. Just working through...everything. It's been hot and humid, which makes me irritable. I've been stressed by people under my house, putting up fences, cutting down trees. Which makes me irritable. I've been trying to stay away from all the nonsense going on in the world, which makes me irritable. I've been half ill, which makes me tired. And irritable.

It's a process.

I suffer from the idea that I have worked hard and I should be happy. But that isn't how life works. You work hard and you have good days and bad days. You do good, but bad things happen anyway.

This makes me irritable.

It's a process.

That I can't control.

Which makes me irritable.


I was talking to Deb today about Death Valley. Talking to Deb makes me happy. Travel makes me happy.

Grace in those things.

Eyes on the horizon.

Tech stuff: Taken with my Nikon D7000. *I took two doses of Motrin last weekend because I had a wicked headache because of what happened in Death Valley. I am not supposed to take Motrin, which is basically the only pain reliever that helps. Other than the high test narcotics they like shooting me full of in the ER. Also, NO, I am not dying any faster than usual. Just to be clear.
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